{"id":1592,"date":"2020-06-04T11:17:00","date_gmt":"2020-06-04T16:17:00","guid":{"rendered":"https:\/\/ddmh.lab.yorku.ca\/?page_id=1592"},"modified":"2023-03-02T14:11:21","modified_gmt":"2023-03-02T19:11:21","slug":"impact-of-covid-19-on-mental-health-and-well-being-of-caregivers-and-families-of-autistic-people","status":"publish","type":"page","link":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/impact-of-covid-19-on-mental-health-and-well-being-of-caregivers-and-families-of-autistic-people\/","title":{"rendered":"Impact of COVID-19 on mental health and well-being of caregivers and families of autistic people"},"content":{"rendered":"\n<div style=\"height:33px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">What's this project about?<\/h2>\n\n\n\n<p>Reports have indicated that caregivers and families of autistic people have experienced considerable stress as a result of the COVID-19 pandemic.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">How did we go about doing this project?<\/h2>\n\n\n\n<p>We conducted a&nbsp;<strong>rapid synthesis of the literature<\/strong> to help us understand what has been documented regarding the impact of COVID-19 on the mental health well-being of caregivers and families of autistic people, and to identify supportive mental health and well-being programs that have emerged as a result.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">What did we do with our research findings?<\/h2>\n\n\n\n<p>An initial report was submitted to CIHR in June 2020. Working with our multidisciplinary team to create and tailor accessible products to communicate our findings to the autism community (i.e., blog posts, podcasts, videos, infographics, etc.).<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Results<\/h2>\n\n\n\n<div style=\"height:18px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<style>.kt-accordion-id_11e20f-b5 .kt-accordion-inner-wrap{column-gap:var(--global-kb-gap-md, 2rem);row-gap:0px;}.kt-accordion-id_11e20f-b5 .kt-accordion-panel-inner{border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;padding-top:var(--global-kb-spacing-sm, 1.5rem);padding-right:var(--global-kb-spacing-sm, 1.5rem);padding-bottom:var(--global-kb-spacing-sm, 1.5rem);padding-left:var(--global-kb-spacing-sm, 1.5rem);}.kt-accordion-id_11e20f-b5 > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap > .kt-blocks-accordion-header{border-top-color:#555555;border-right-color:#555555;border-bottom-color:#555555;border-left-color:#555555;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;border-top-left-radius:0px;border-top-right-radius:0px;border-bottom-right-radius:0px;border-bottom-left-radius:0px;background:#f2f2f2;font-size:18px;line-height:24px;color:#555555;padding-top:10px;padding-right:14px;padding-bottom:10px;padding-left:14px;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle )  > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap .kt-blocks-accordion-icon-trigger:after, .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle )  > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap .kt-blocks-accordion-icon-trigger:before{background:#555555;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-blocks-accordion-icon-trigger{background:#555555;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-blocks-accordion-icon-trigger:after, .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-blocks-accordion-icon-trigger:before{background:#f2f2f2;}.kt-accordion-id_11e20f-b5 > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap > .kt-blocks-accordion-header:hover, \n\t\t\t\tbody:not(.hide-focus-outline) .kt-accordion-id_11e20f-b5 .kt-blocks-accordion-header:focus-visible{color:#444444;background:#eeeeee;border-top-color:#eeeeee;border-right-color:#eeeeee;border-bottom-color:#eeeeee;border-left-color:#eeeeee;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle ) .kt-accordion-header-wrap .kt-blocks-accordion-header:hover .kt-blocks-accordion-icon-trigger:after, .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle ) .kt-accordion-header-wrap .kt-blocks-accordion-header:hover .kt-blocks-accordion-icon-trigger:before, body:not(.hide-focus-outline) .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle ) .kt-blocks-accordion--visible .kt-blocks-accordion-icon-trigger:after, body:not(.hide-focus-outline) .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle ) .kt-blocks-accordion-header:focus-visible .kt-blocks-accordion-icon-trigger:before{background:#444444;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-accordion-header-wrap .kt-blocks-accordion-header:hover .kt-blocks-accordion-icon-trigger, body:not(.hide-focus-outline) .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-accordion-header-wrap .kt-blocks-accordion-header:focus-visible .kt-blocks-accordion-icon-trigger{background:#444444;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-accordion-header-wrap .kt-blocks-accordion-header:hover .kt-blocks-accordion-icon-trigger:after, .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-accordion-header-wrap .kt-blocks-accordion-header:hover .kt-blocks-accordion-icon-trigger:before, body:not(.hide-focus-outline) .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-accordion-header-wrap .kt-blocks-accordion-header:focus-visible .kt-blocks-accordion-icon-trigger:after, body:not(.hide-focus-outline) .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-accordion-header-wrap .kt-blocks-accordion-header:focus-visible .kt-blocks-accordion-icon-trigger:before{background:#eeeeee;}.kt-accordion-id_11e20f-b5 .kt-accordion-header-wrap .kt-blocks-accordion-header:focus-visible,\n\t\t\t\t.kt-accordion-id_11e20f-b5 > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap > .kt-blocks-accordion-header.kt-accordion-panel-active{color:#ffffff;background:#444444;border-top-color:#444444;border-right-color:#444444;border-bottom-color:#444444;border-left-color:#444444;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle )  > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap > .kt-blocks-accordion-header.kt-accordion-panel-active .kt-blocks-accordion-icon-trigger:after, .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basiccircle ):not( .kt-accodion-icon-style-xclosecircle ):not( .kt-accodion-icon-style-arrowcircle )  > .kt-accordion-inner-wrap > .wp-block-kadence-pane > .kt-accordion-header-wrap > .kt-blocks-accordion-header.kt-accordion-panel-active .kt-blocks-accordion-icon-trigger:before{background:#ffffff;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-blocks-accordion-header.kt-accordion-panel-active .kt-blocks-accordion-icon-trigger{background:#ffffff;}.kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-blocks-accordion-header.kt-accordion-panel-active .kt-blocks-accordion-icon-trigger:after, .kt-accordion-id_11e20f-b5:not( .kt-accodion-icon-style-basic ):not( .kt-accodion-icon-style-xclose ):not( .kt-accodion-icon-style-arrow ) .kt-blocks-accordion-header.kt-accordion-panel-active .kt-blocks-accordion-icon-trigger:before{background:#444444;}@media all and (max-width: 767px){.kt-accordion-id_11e20f-b5 .kt-accordion-inner-wrap{display:block;}.kt-accordion-id_11e20f-b5 .kt-accordion-inner-wrap .kt-accordion-pane:not(:first-child){margin-top:0px;}}<\/style>\n<div class=\"wp-block-kadence-accordion alignnone\"><div class=\"kt-accordion-wrap kt-accordion-wrap kt-accordion-id_11e20f-b5 kt-accordion-has-4-panes kt-active-pane-0 kt-accordion-block kt-pane-header-alignment-left kt-accodion-icon-style-basic kt-accodion-icon-side-right\" style=\"max-width:none\"><div class=\"kt-accordion-inner-wrap\" data-allow-multiple-open=\"false\" data-start-open=\"none\">\n<div class=\"wp-block-kadence-pane kt-accordion-pane kt-accordion-pane-4 kt-pane_fd6e05-c5\"><div class=\"kt-accordion-header-wrap\"><button class=\"kt-blocks-accordion-header kt-acccordion-button-label-show\"><span class=\"kt-blocks-accordion-title-wrap\"><span class=\"kt-blocks-accordion-title\">Publication<\/span><\/span><span class=\"kt-blocks-accordion-icon-trigger\"><\/span><\/button><\/div><div class=\"kt-accordion-panel kt-accordion-panel-hidden\"><div class=\"kt-accordion-panel-inner\">\n<p><a rel=\"noreferrer noopener\" href=\"https:\/\/doi.org\/10.1080\/23794925.2021.1941432\" data-type=\"URL\" data-id=\"https:\/\/doi.org\/10.1080\/23794925.2021.1941432\" target=\"_blank\">Lee, V.,&nbsp;Albaum, C.,&nbsp;Tablon Modica, P., Ahmad, F., Gorter, J. W., Khanlou, N., McMorris, C., Lai, J., Harrison, C., Hedley, T., Johnston, P., Putterman, C., Spoelstra, M., &amp;&nbsp;Weiss, J. A.&nbsp;(2022). The impact of COVID-19 on the mental health and wellbeing of caregivers of autistic children and youth: A Scoping review.&nbsp;<em>Autism Research<\/em>.&nbsp;<\/a><a rel=\"noreferrer noopener\" href=\"https:\/\/doi.org\/10.1002\/aur.2616\" data-type=\"URL\" target=\"_blank\">https:\/\/doi.org\/10.1002\/aur.2616<\/a><\/p>\n<\/div><\/div><\/div>\n\n\n\n<div class=\"wp-block-kadence-pane kt-accordion-pane kt-accordion-pane-3 kt-pane_3c1ec2-71\"><div class=\"kt-accordion-header-wrap\"><button class=\"kt-blocks-accordion-header kt-acccordion-button-label-show\"><span class=\"kt-blocks-accordion-title-wrap\"><span class=\"kt-blocks-accordion-title\">Report<\/span><\/span><span class=\"kt-blocks-accordion-icon-trigger\"><\/span><\/button><\/div><div class=\"kt-accordion-panel kt-accordion-panel-hidden\"><div class=\"kt-accordion-panel-inner\">\n<p><a rel=\"noreferrer noopener\" href=\"https:\/\/covid19mentalhealthresearch.ca\/synthesis\/impact-of-covid-19-on-the-mental-health-and-well-being-of-caregivers-and-families-of-autistic-people\/\" target=\"_blank\">Lee, V., Albaum, C., Tablon Modica, P., Ahmad, F., Gorter, J. W., Khanlou, N., McMorris, C., Lai, J., Harrison, C., Hedley, T., Johnston, P., Putterman, C., Spoelstra, M., &amp;&nbsp;Weiss, J. A.&nbsp;(2020).&nbsp;<em>Impact of COVID-19 on the mental health and wellbeing of caregivers and families of autistic people: A rapid synthesis review.&nbsp;<\/em>Report prepared for the Canadian Institutes of Health Research. https:\/\/covid19mentalhealthresearch.ca\/synthesis\/impact-of-covid-19-on-the-mental-health-and-well-being-of-caregivers-and-families-of-autistic-people\/<\/a><\/p>\n\n\n\n<p><\/p>\n<\/div><\/div><\/div>\n<\/div><\/div><\/div>\n\n\n\n<div style=\"height:22px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Infographic<\/h3>\n\n\n\n<div style=\"height:7px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div data-wp-interactive=\"core\/file\" class=\"wp-block-file\"><object data-wp-bind--hidden=\"!state.hasPdfPreview\" hidden class=\"wp-block-file__embed\" data=\"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-content\/uploads\/sites\/407\/2021\/10\/CIHR_Impact-of-COVID-19-Infographic.pdf\" type=\"application\/pdf\" style=\"width:100%;height:600px\" aria-label=\"Embed of Embed of Impact of COVID-19 Infographic..\"><\/object><a href=\"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-content\/uploads\/sites\/407\/2021\/10\/CIHR_Impact-of-COVID-19-Infographic.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Impact of COVID-19 Infographic<\/a><a href=\"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-content\/uploads\/sites\/407\/2021\/10\/CIHR_Impact-of-COVID-19-Infographic.pdf\" class=\"wp-block-file__button\" download>Download<\/a><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Want to know more about this project?<\/h2>\n\n\n\n<p>Please email Dr. Jonathan Weiss at <a rel=\"noreferrer noopener\" href=\"mailto:jonweiss@yorku.ca\" target=\"_blank\" data-type=\"mailto\" data-id=\"mailto:jonweiss@yorku.ca\">jonweis<\/a><a href=\"mailto:jonweiss@yorku.ca\" data-type=\"mailto\" data-id=\"mailto:jonweiss@yorku.ca\" target=\"_blank\" rel=\"noreferrer noopener\">s<\/a><a rel=\"noreferrer noopener\" href=\"mailto:jonweiss@yorku.ca\" target=\"_blank\" data-type=\"mailto\" data-id=\"mailto:jonweiss@yorku.ca\">@yorku.ca<\/a>, if you have any questions.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n\n\n<p>This project is funded by <a href=\"https:\/\/cihr-irsc.gc.ca\/e\/193.html\">Canadian Institutes of Health Research<\/a>.<\/p>\n\n\n\n<div style=\"height:35px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>What's this project about? Reports have indicated that caregivers and families of autistic people have experienced considerable stress as a result of the COVID-19 pandemic. How did we go about doing this project? We conducted a&nbsp;rapid synthesis of the literature to help us understand what has been documented regarding the impact of COVID-19 on the [&hellip;]<\/p>\n","protected":false},"author":660,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_kad_blocks_custom_css":"","_kad_blocks_head_custom_js":"","_kad_blocks_body_custom_js":"","_kad_blocks_footer_custom_js":"","footnotes":""},"tags":[],"class_list":["post-1592","page","type-page","status-publish","hentry"],"taxonomy_info":[],"featured_image_src_large":false,"author_info":{"display_name":"tablonp","author_link":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/author\/tablonp\/"},"comment_info":"","_links":{"self":[{"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/pages\/1592","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/users\/660"}],"replies":[{"embeddable":true,"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/comments?post=1592"}],"version-history":[{"count":11,"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/pages\/1592\/revisions"}],"predecessor-version":[{"id":3089,"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/pages\/1592\/revisions\/3089"}],"wp:attachment":[{"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/media?parent=1592"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.yorku.ca\/health\/lab\/ddmh\/wp-json\/wp\/v2\/tags?post=1592"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}